Multiple Myeloma Survivors' Stories

 

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[Note: In this list, the first year is the birth year,
and "Class of..." refers to year MM was diagnosed.]

Jack Aiello, San Jose, CA; jackaiello@comcast.net
1949 / Class of ’95 / Type: IgG Kappa light chain / Updated: 8/13

Andy; and1h@talktalk.net
1958 / Class of  '01 / Thal-Dex, diet and exercise / Updated: 8/10

Anonymous #1
1927 / Class of '83 / Type: Solitary Plasmacytoma progressing to Myeloma /
Surgery, chemo / Long-term remission / Updated: 3/04

Marla Barnett, Texas; dreamcatcher77859@peoplepc.com
1958 / Class of '00 / Family history of immune system diseases / 
Possible Aspartame toxicity / Updated: 6/06

Bill Bauknecht, East Falmouth, MA; billbauknecht@comcast.net or billbauknecht@aol.com
1937 / Class of '96 / Tumors, radiation, SCT, relapse, Thal / Remission / Updated: 12/09

Martin Boling, Canberra, Australia; martindaholder(at)emailme(dot)com(dot)au
1951 / Class of 2000 / Type: MGUS to IgG-Kappa within 3 mo. / Thal-Dex / Remission / Updated: 1/09

James D. Bond, Shaker Heights, OH; jim.bond@ey.com
1948 / Class of '92 / Type: Kappa Light Chain / 3x SCT, other treatments, active life / Last update: 3/09

Claire Bruhns, Canberra, Australia; bernardparker@velocitynet.com.au
1957 / Class of '07 / Type: Lambda Light-chain / Kidney failure / Holistic treatment / Updated: 5/08

Steve Carson, Winston-Salem, NC; scarson@polynetgel.com
1943 / Class of '05 / Type: IgG Kappa / Velcade-Dex-Thalidomide, Revlimid-Dex / Updated: 6/07

Gary Christison, Abbotsford, BC, Canada; global_cowboy@hotmail.com
1961 / Class of '05 / Broken pelvis / Chemo and SCT / Updated: 7/06

Cheryll Clamon, Iowa City, IA; c.clamon@mchsi.com
1945 / Class of 2001 / VAD, SCT, thal.& dex, Velcade, 2nd SCT / Remission / Updated: 6/13

Jeremiah J. Colihan, Pennington, NJ; jjcolihan@comcast.net
1957 / Class of '04 / Tandem PBSCT, remission / Updated: 1/09

Larry Conner, Rutherfordton, NC; larry.m.conner@ncagr.gov or my wife at tconner@rcsnc.org
1968 / Class of '08 / Lytic lesion in shoulder / Radiation, chemo / SCT planned / Last update: 5/11

Ruby Conwell, Chicago, IL; jamestoo@comcast.net
1932 / Class of '06 / Lambda light chain / Broken hip / Velcade / Updated: 4/06

Judy Crawford, Yreka, CA; jcrawford110@sbcglobal.net
1949 / Class of '52 / Type: IgA Lambda, smoldering / Normal Hem. / Cell harvest / Updated: 1/13

J.C. Dale, Vancouver, B.C.; jccanam@axion.net
1962 / Class of '03 / Type: IgG / Matched-donor allo transplant / Updated: 12/06

Chrissy D, Jersey Shore, NJ; landslide7-at-verizon-dot-net
1969 / Class of '06 / Type: IgA Kappa / Thal/Dex, auto SCT, remission until Dec 08 / Chemo / Last update: 8/12

Ralph D'Errico, Tucson, AZ; emdnurse@sbcglobal.net
1952 / Class of '01 / Type: IgG / "Midi"-allo / Remission, GvHD / Updated: 3/14

Chris Ditta, Henderson, NV; vdittav@aol.com
1963 / Class of '02 / Bone involvement / Chemo, dialysis / Updated: 12/06

Kathy D'Orlando, Ormond Beach, FL; kdorlando@cfl.rr.com
1956 / Class of '03 / Type: IgA Kappa / Tandem SCTs / Revlimid / Updated: 9/06

Robin Downing, Las Vegas, NV; robindowning62@yahoo.com
1962 / Class of '06 / Type: IgA / SCT, Velcade + Doxorubicin, SCT#2 / Remission, relapse / Updated: 1/13

Hélène Dubé, Montréal, Canada; richard.vachon4@sympatico.ca
1957 / Class of '03 / Type: IgA Lambda / Chemo, spine fracture / Updated: 5/05

David Emerson, Chagrin Falls, OH; daviddecemerson@me.com
1959 / Class of '94 / Type: non-secretory / PBSCT, anti-neoplaston / Remission / Updated: 7/09

Fred Epley, near Spokane, WA; jeepepley@msn.com
1950 / Class of '06 / Type: IgA / plasmacytoma / radiation, chemo, SCT / Remission / Updated: 6/13

Diana Fearon; defearon@houston.rr.com
1952 / Class of '99 / MGUS, bone lesions, fatigue / Blood-building supplement / Updated: 6/07

Kathy Fortier, Midland, MI; kathjune1961@gmail.com
1961 / Class of '98 / Plasmacytoma on optic nerve, surgery, transplant / Remission / 
Updated: 4/13

Bart Freitag, Elko, Nevada; bsfreitag@frontiernet.net
1964 / Class of '04 / Type: IgA Kappa Light Chain / 2x SCT / Remission / Updated: 1/09

Cherish S. Garcia, Manila, Philippines; csgarzia@yahoo.com
1973 / Class of '08 / Type: IgG-Kappa / Chemo, PBSCT / Remission / Updated: 11/12

Reed Gaulding, ReedGaulding@aol.com
1950 / Class of '01 / Type: IgA Lambda / Updated: 7/04

John Gillan, Boise, IA; gillbunch@hotmail.com
1960 / Class of '05 / Type: IgA / Bone fractures / SCT, Thal/Pred / Remission / Updated: 1/09

Cath Harwood, Bendigo, Victoria, Australia; bob_cat@bigpond.com
1946 / Class of '02 / Type: IgG / Bone involvement / Radiation, chemo, Revlimid / Updated: 9/08

John Hasson, Winter Haven, FL; jfhasson@verizon.net
1952 / Class of '06 / Type: IgA Lambda light chain / VAD, Velcade, SCT / Updated: 8/08

Robin Holcomb, Glens Falls, NY; robinfreebird2003@yahoo.com
1959 / Class of '06 / Type: IgA / Bone issues / Dex and Thal / Updated: 11/12

Steven Howell, Quinnsgranny9279@aol.com
1962 / Class of '96 / Plasmacytomas in head, SCT, Thal / Updated: 5/03

Jacklyn Inman, Dowagiac, MI; cloudeone@verizon.net
1958 / Class of '02 / Type: IgG; Autologous SCT / Updated: 2/06

Barbara Jewell, Vancouver, WA; Uppityx9@cs.com
1947 / Class of '01 / Type: Kappa LC / Updated: 8/04

Catherine Kerr, Watertown, MA; catherine_kerr@hms.harvard.edu
1964 / Class of '96 / Type: IgG / Meditation and Chinese martial arts / Updated: 1/07

Duane Klein,Henderson, NV; DKlein8722@aol.com
1942 / Class of '04 / Type: IgG / Thal + Dex / Remission / Updated: 1/08

Judy Knopp, PA; juleknopp@aol.com
1939 / Class of '04 / Prior cancer, bone inv. / Chemo, Allo SCT / Remission, relapse / Updated: 2/11

Stephan Laage-Witt, Loerrach (Germany); stephan@laagewitt.de
1959 / Class of '05 / Type: IgD / auto + allo transplants / Complete remission / Updated: 2/10

Regina Lanz, Fort Lauderdale, FL; regblanz@mintofla.com
1955 / Class of '98 / Type: Non-secretory / Tandem transplants Remission / Updated: 10/06

Pennie Lawrence, Starr, SC; crlawlor@aol.com
1952 / Class of '01 / Type: IgG Kappa / Chemo, 2xSCT / Remission /  Updated: 10/03

Mindy Lernihan, Fredericksburg, VA; mekaco79@gmail.com
1954 / Class of '92 / Kappa Light-Chain / SCT, Kidney transplant / Remission / Updated: 9/13

Ron L'Italien, New Hampshire; Dawndrakski@comcast.net
1967 / Class of '04 / Type: IgG, smoldering MM / Zometa / Updated: 8/10

Alex Maas, San Diego, CA; a.maas@cox.net
1959 / Class of '03 / Type: IgG Lambda / Chemo / Updated: 11/07

Kandee Maddrell, Monroe, WI; kanrn@yahoo.com
1958 / Class of '03 / Bone involvement, SCT, kidney transplant / Remission / Updated: 3/09

Ronald D. Main, Midland, MI; Ron2300@aol.com
1946 / Class of '00 / IgG Kappa / Successful matched donor allo BMT / Updated: 5/04

Marvin Mason, Hemet, California; marvter@msn.com
1938 / Class of '02 / Type: IgA Kappa Light Chain / PBSCT+Thal / Remission / Updated: 7/12

Brenda Mather, Wirral, England; BEMather@aol.com
1942 / Class of '94 / Bone pain / Chemo, remission / Updated: 7/06

Leo Matteotti, Lethbridge, AB, Canada; leomatt1@telus.net
1950 / Class of '07 / IgG Kappa / Bone lesions right femur / SCT, Revlimid, Dex, Velcade, Cyclo / Updated: 3/13

Gloria Monari, Palm Bay, Florida
19?? / Class of '92 / Bone and organ involvement / Chemo / Updated: 7/04

John Nesci, Freehold, NJ; oakyjohn@gmail.com
1936 / Class of '90 / Transplant Class of '94 / Type: IgG Kappa / Updated: 1/09

Lorna Newlin, Owens Cross Road, AL; lorna@cedar-creek.net
1938 / Class of '98 / Type IgA Kappa / Syngeneic (twin) SCT, remission / Updated: 3/11

James Vincent Palomar, Livermore, CA; luckystrmgt@comcast.net
1962 / Class of '97 / Type: Solitary Plasmacytomas / Diverse treatments / Updated: 3/08

Patricia Pappas, Foresthill, CA; ppappas@ftcnet.net
1952 / Class of '07 / Type: Lambda L.C. / Spine compression / Natural therapy / Updated: 4/08

Sheryl Pearl, Smithtown, L.I., NY; sherpear19@gmail.com 
1949 / Class of '95 / Bone lesions / Rad, Chemo, SCT / Remission / Updated: 5/12

 Kathy Pedersen, Petesblessed11@yahoo.com
1959 / Class of '98 / Type: IgG, Kappa light-chain / Mini-allo, remission / Updated: 6/12

Darlene Pfeiffer, Atlanta, GA; darlee53@charter.net
1946 / Class of '08 / Type: IgG / Back pain / Chemo, SCT / Remission, relapse / Updated: 4/09

Bernard Pilcher, Ontario, Canada; bernard.pilcher@sympatico.ca
1938 / Class of '93 / Updated: 9/06

Joanie Pinson, Maryland; jtpinson@highbridgemusic.com
1953 / Class of '99 / Spinal fractures / Radiation, PCSCT / Remission / Updated: 3/13

Helen Protasewicz, Edgewater, FL; hjprotas@bellsouth.net
1939 / Class of '06 / Type IgA / Back fractures / Chemo and PBSCT / Updated: 10/07

David Puente, CA; habubrat@gmail.com
1959 / Class of '08 / PBSCT after hyperbaric treatment / ALA for neuropathy / Updated: 12/12

David Rabl, Victoria, Australia; daverabl@gmail.com
1952 / Class of '00 / Bone thinning / SCT, remission / Updated: 2/13

Peter Randløv, Copenhagen, Denmark; randlov@post9.tele.dk
1942 / Class of '97 / Updated: 1/09

Ashok Raswant, Ludhiana, Punjab; araswant@yahoo.com
1951 / Class of 2003 / Type: IgG / Spinal lesions / Radiotherapy, Chemo / Updated 3/13

Bob Rinker; bob.rinker@comcast.net
1942 / Class of '94 / Type: IgG / Spine fracture / Updated: 1/09

Amy Roller, Sidney, OH; ajroller4@hotmail.com
1958 / Class of '05 / DVD, pulsed Dex, Revlimid, PBSCT / Updated: 7/08

Bob Rose, Houston, Texas; taxcatkim@yahoo.com
1969 / Class of '04 / Type: IgA Kappa LC / Thal+Dex / Updated: 11/10

Dorothy A. Russell, Inverness, FL; k4fnu@tampabay.rr.com
1926 / Class of '95 (MGUS '85) / Type: IgG /
MGUS progresses to MM over 10 years / Updated: 1/09

Barbara Schultz, Chicago, IL; barbschultz49@comcast.net
1950 / Class of '01 / Type: IgA / Thal+Dex / Updated: 1/03

Ebbe R. Skov, Mission Viejo, CA; ERSkov@aol.com
1936 / Class of '99 / Type: Kappa LC / Mini-allo + relapse / Updated: 7/05

Jaclyn Smith, Victoria, Australia; janitasmith@hotmail.com
1990 / Class of 2009 / Plasmacytomas, pregnancy / X-rays / Updated: 11/13

Sandra Smith, Devonport, Tasmania; smithsandra@y7mail.com
1945 / Class of '96 / Type: Plasmacytomas / Updated: 12/13

Cheryl Suzanne Spiese, Binghamton, NY; cspiese@binghamton.edu
1947 / Class of '92 / Type: IgA / Using alternative medicine / Updated: 9/05

Carole Storm, NY state
1940 / Class of '05 / Bone lesions, fracture / Chemo, Revlimid+Dex / Updated: 9/07

David Suwala, Durham, NC; davesuwala@gmail.com 
1936 / Class of '94 / Type: IgG / Spine reconstruct + X-ray / Relapse, chemo / Updated: 8/13

Thoedorou-Moustaka, Greece; vasiliki19@hotmail.com
1935 / Class of '02 / Type: IgG Kappa / Bone involvement, ONJ / Updated: 7/06

Charles "Chuck" Thompson, Panama City, Florida; cwthompson7002@comcast.net
1963 / Class of '03 / Smoldering Multiple Myeloma / Updated: 2/07

Eric Vogt, Southern CA; cdfchief@gmail.com
1942 / Class of '01 / Type: IgG, Lambda / Chemo, PBSCT / Remission / Updated: 8/12

Earl Wachtel, San Jose CA; wachtel@att.net
1930 / Class of '05 / Type: IgG, stage I / Updated: 5/08

Wei-en Zheng; pingguo_92@yahoo.com
1939 / Class of '06 / Type: Stage II IgG Kappa-light chain / Velcade, Thalidomide / Updated: 6/07

Zhong Xiu Xu, Su Zhou, Jaing Su Shing, China; idwong2000@hotmail.com
1952 / Class of 2009 / Type: IgG Lambda-Light Chain, Stage III-B / Velcade, Revlimid / Updated: 6/11

Last updated: March 26, 2014 08:08 AM -0500

 

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